About Us

Finding Inspiration at Every Turn

We believe in the importance of community and empowerment for everyone living with scleroderma and their supporters while driving research that will lead to a better quality of life and ultimately a cure.

Hope Faith Cure Walk photo Large group families

Our Story

The Scleroderma Foundation of Greater Chicago has been serving the scleroderma community and fighting for a cure for more than 40 years. This cause is very personal for us. What started as a grassroots organization around one family's dining table has evolved into a multi-state organization and a national leader in both patient support and research funding.

Our team is deeply committed to our mission and has been a driving force in advancing the cause both locally and nationwide. With your help, we will continue to expand our services and make sure that everyone living with scleroderma feels empowered to live their best life, while we fight for a cure.

Meet the Team

Executive Director

Stephanie Gresh

Stephanie has been involved with the Scleroderma Foundation of Greater Chicago since 2009. When scleroderma affected her own family, she decided to start fundraising and help bring awareness to the disease. She remains deeply committed to the cause and continues looking for ways to improve the lives of all those living with scleroderma.

Marketing and Events Coordinator

Dennis Brock

Dennis joined the Scleroderma Foundation of Greater Chicago team in early 2023. He has a background in historical preservation and work in non-profit advocacy. He is passionate about helping others, serving his wider community, and learning about history.

Director of Community Engagement

Alexa Young

Maria has spent her career supporting individuals living with rare and chronic diseases, serving in a variety of leadership and advocacy roles. With a background in sports medicine and public health, she is driven by a lifelong commitment to helping people live full, meaningful lives. At the heart of her work is a passion for growing the scleroderma support community and ensuring patients feel seen, supported, and empowered.

Our team also includes countless volunteers that help us achieve our mission! We are so grateful for all of you!

Medical Advisory Board

Our Medical Advisory board is a leading body of scleroderma experts working to improve patient care and scleroderma awareness across the nation.

Learn More

Contact Us

Call

312-660-1131

Email

info@stopscleroderma.org

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Our Partners

We are proud to collaborate with these organizations in order to move our mission forward and provide the best possible services to the scleroderma community.