Join the
Scleroderma Advocacy Team!
Are you a passionate and dedicated individual who wants to make a real difference in the lives of people living with scleroderma? Join our Scleroderma Advocacy Team! As an advocate, you'll have the opportunity to share your story with others on behalf of people living with scleroderma and related conditions. Training and guidance are provided. Use your voice to raise awareness and drive change. If you're interested in joining our team, apply now online or email info@stopscleroderma.org for more info.
Why Get Involved with Scleroderma Advocacy?
Make a Difference
Every voice matters! By joining our Scleroderma Advocacy Team and sharing your story, you’re helping to raise awareness and drive change that can improve the lives of people affected by scleroderma.
Get the Support You Need
We provide training and resources, so you’ll feel confident and prepared to be an effective advocate. You'll learn valuable skills and strategies for communicating your message to your representatives and the media.
Create Real Change
You can help ensure that those affected by scleroderma are being heard on Capitol Hill and in local districts. When appropriate, you can help us advocate for meaningful legislation that can improve lives.
Join a Passionate Community
Advocacy is a chance to connect with others who share your passion for making a difference. You’ll meet inspiring people and work alongside those dedicated to changing lives.
What Will Advocates Do?
Bi-monthly Meetings
Our advocates come together every two months to discuss new developments, upcoming events, and legislative priorities. These meetings are strategically scheduled to align with legislative calendars, ensuring our efforts remain timely and impactful as we prepare for the next steps in scleroderma advocacy.
Meetings on Capitol Hill
Advocates can travel to Washington D.C., to meet with representatives and policymakers. Through face-to-face meetings, they share stories, experiences, and important information, advocating for policy changes that support scleroderma patients nationwide. There may also be opportunities to meet over Zoom.
Community Outreach
Our team actively engages in the community by connecting with individuals, families, and local groups to raise awareness about scleroderma. This could include attending events, participating in conversations, or providing educational resources to build support and understanding within local communities.
Media Engagement and Awareness
Advocates work with media outlets and utilize social media platforms to spread awareness of scleroderma. By sharing personal stories, advocates put a human face on scleroderma, offering insight into the challenges and triumphs of living with this condition.
