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Resources and Education

We connect you with experts in the field to help you understand scleroderma and how to live better. Sessions cover a range of topics from nutrition to lung involvement to GI issues. We continue to add new programs throughout the year. Check back for updates or sign up for email alerts.

Doctors at Patient Education Conference

Why Should I Attend? 

  • Meet and learn from leading scleroderma specialists

  • Ask questions and get the answers you need

  • Connect with others living with scleroderma

  • Find new ways to manage and improve your health

  • Develop a support network

  • Get motivated and inspired!

Who Should Attend?

  • Scleroderma patients

  • Caregivers

  • Friends & family

  • Physicians

Upcoming Education Events

Scleroderma and Oral Health: Ask the Dentist

Monday, April 29, 2024

Dr. Hogan will talk about issues that arise with oral care and scleroderma. We will discuss some of the methods your dental team can utilize to help manage your condition, and also some ways that you can help yourself and your dental team manage your condition.  We will discuss some unique methods for maintaining your oral health care and will allow plenty of time for an open Q&A session.

Scleroderma Patient Education Conference 

Saturday, May 4, 2024

Hyatt Lodge - Oakbrook, IL

Experts from around the nation will discuss various topics such as treatment options, improving hand function, combatting fatigue, and more. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options, and connect with others in the scleroderma community. This program is free. Lunch will be provided.

Scleroderma 101 (Webinar)

May 13, 2024

5-6 pm CST

If you've recently received a scleroderma diagnosis you may have a lot of questions about what to expect and what your options are. Join us for Scleroderma 101, a free virtual meeting led by Dr. Carrie Richardson from the Northwestern Scleroderma Program. The meeting is held via Zoom.

 

Anyone is welcome to attend. This is your chance to learn about scleroderma, get your questions answered, connect with others, and learn how to stay mentally and physically well.

Healthy Strategies for Coping with Scleroderma (Webinar)

May 30, 2024

5:30 pm CST

This is a workshop for newly diagnosed patients and their caregivers. The format will include both a presentation on coping as well as a group discussion in which participants can ask questions and share perspectives about coping with scleroderma. This workshop is led by Dr. Judy Wilen from Northwestern Medicine.   

Ongoing Guest Speakers

Two of our topic-centered support groups have monthly guest speakers here to give insightful presentations and discussions. Check them out and sign up below!

Past Education Events

Yoga for Scleroderma Webinar

Saturday, November 18, 2023

 

This webinar will teach you how to adapt and stay safe in a yoga class, whether you are exercising on the floor, in a chair or standing. Our demonstrators will show props, tips and tricks to make yoga accessible, showing common poses that offer a full range of motion for the spine, core/quad strengtheners, and how to hack down-dog, the pose that keeps people out of yoga classes, all while being GERD-friendly.  

 

We will discuss how yoga can reduce overstimulation of the vagus nerve and the benefits in daily life, especially digestion.  We will end with a guided relaxation to reset the Rest & Digest cycle. There will also be time for questions throughout the presentation.

Workshop: Improving Mental Health with Chronic Illness

Wednesday, November 29, 2023

 

If you’ve experienced feelings of sadness, anxiety, isolation, fear, grief, or depression since receiving your scleroderma diagnosis, you are not alone. Continue the discussion from the Fall Patient Education conference with this informational and transformative mental health workshop presented by the team at Ellie Mental Health. This interactive workshop will provide practical tools and tips for improving our mental and emotional health. We will discuss various mental health challenges that we face with chronic illness, particularly scleroderma.

Fall Patient Education Conference

Saturday, October 21, 2023

Gleacher Center - Chicago IL

Videos Are Now Online!

 

Experts from the Northwestern Scleroderma Program will discuss various topics such as managing GI symptoms, scleroderma and the lung, PAH, nutrition, and more. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options and better manage the disease. This program is free. Lunch will be provided.

Scleroderma 101 (Webinar)

Tuesday, May 23, 2023​

5-6 pm CST

If you've recently received a scleroderma diagnosis you may have a lot of questions about what to expect and what your options are. Join us for Scleroderma 101, a free virtual meeting led by Dr. Carrie Richardson from the Northwestern Scleroderma Program. The meeting is held via Zoom.

 

Anyone is welcome to attend. This is your chance to learn about scleroderma, get your questions answered, connect with others, and learn how to stay mentally and physically well.

Scleroderma Patient Education Conference 

Saturday, May 13, 2023

Hyatt Lodge - Oakbrook, IL

Join us for an informative and inspirational day! Our presenters will discuss ways to manage scleroderma and answer your questions. Topics will include gastrointestinal management, lung involvement in scleroderma, dental care, exercise and more. This program is free. Lunch will be provided.

Scleroderma Lung Disease (Webinar)

Tuesday, March 21, 2023

If you have interstitial lung disease (ILD) as a result of scleroderma (SSc) or would like to learn more about how scleroderma affects the lungs, join us for a case discussion with the experts at the Northwestern Scleroderma Program. They will discuss various scenarios involving SSc and ILD and what is involved in considering treatment options. 

Presenters:
Jane E. Dematte D'Amico, MD, Professor of Medicine, Northwestern University, Feinberg School of Medicine, Director of Interstitial Lung Disease Program

Dr. Anthony Esposito, Assistant Professor of Medicine Pulmonary Critical Care/ILD

Ray Goodwin, APRN, ILD Nurse Practitioner

Events Calendar

Educational Videos

Explore our comprehensive educational resources by visiting our YouTube Channel for our informative content. We have over 90 educational videos that cover a diverse range of topics presented by expert speakers, including mental health, body movement, GI, ILD, Raynaud's, Nutrition, Dentistry, and much more.

New Drug Approvals for Scleroderma Interstitial Lung Disease

The Joy of Self-Care Through the Arts

Yoga for Scleroderma: Teaching and Practice

Yoga for Scleroderma

Cooking Nutritious Meals at Home: Advice from a Chef

Scleroderma & Lung Disease Webinar

 Video Playlists

Yoga For Scleroderma

Empower yourself to relieve symptoms and reduce stress! Yoga for Scleroderma was founded by Kathy Randolph to offer relief to scleroderma patients through yoga postures, breathing techniques and guided meditation. Their goal is to make yoga accessible for everyone so you can keep moving. Visit yogaforscleroderma.com to learn more. 

Questions?

We are here to help. Contact us with any questions you may have. 

(312) 660-1131    info@stopscleroderma.org

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