Scleroderma Patient
Education Conference
Saturday, October 21, 2023
Chicago, IL
8 am - 4:30 pm
About the Conference
You didn’t choose scleroderma, but you do have choices - and you’re not alone. We have experts to guide you, and a community of people to support you so you can make informed decisions and live better.
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Hear the latest treatment options
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Experts in pulmonology, gastroenterology, rheumatology & more
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Find answers to your questions
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Get inspired by a community that understands
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Learn about small lifestyle changes to improve everyday life
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Take a holistic approach to your health
Topics & Speakers
Hand Involvement - Calcinosis
Ultrasound and Scleroderma
Carrie L. Richardson, MD
Assistant Professor - Feinberg School of Medicine
Rheumatologist - Northwestern Scleroderma Program
Duncan Moore, MD
Assistant Professor - Feinberg School of Medicine
Rheumatologist - Northwestern Scleroderma Program
Dr. Richardson has worked with the Northwestern Scleroderma Center since 2012 and has published several papers on scleroderma, calcinosis, myositis, and interstitial lung disease. She completed her residency at Northwestern in 2015 and her fellowship at Johns Hopkins in 2018, and she returned to Northwestern in early 2022 as Co-Director of the Scleroderma Center.
Dr. Richardson's talk will focus on scleroderma's impact on the hands, particularly calcinosis. Attendees can expect to gain valuable knowledge that will empower them in their journey with scleroderma. This talk promises to be an invaluable opportunity for patients to deepen their understanding of these conditions and enhance their approach to managing scleroderma-related symptoms.
Following Dr. Richardson’s presentation, there will be a short discussion of the use of ultrasound in systemic sclerosis with Dr. Duncan Moore. Dr. Moore graduated from the University of Washington School of Medicine in 2015. Since then, his focus areas for treatment include scleroderma, joint injections, interventional ultrasound, and gout.
Scleroderma and Nutrition
Bethany Marie Doerfler, MS, RDN
Clinical Research Dietitian
Division of Gastroenterology & Hepatology, Northwestern University Feinberg School of Medicine
Bethany Doerfler, MS, RD, LDN is a registered dietitian whose clinical practice and research focuses on providing wellness-based medical nutrition therapy for digestive disorders and allergic bowel diseases. She currently practices in the Division of Gastroenterology and Hepatology at Northwestern Medicine in Chicago, IL. She is the first dietitian to be fully integrated into a gastroenterology division for both research and patient care.
Attendees of her talk can expect to receive invaluable insights into the role of nutrition in managing scleroderma, offering a unique opportunity to optimize their dietary choices and improve scleroderma symptoms Dr. Doerfler's talk will be an excellent resource for patients and caregivers alike.
Interstitial Lung Disease (ILD) and Upcoming Clinical Trials
Bradford Bemiss, MD,
Assistant Professor, Loyola Medicine
Critical Care and Internal Medicine
Dr. Bemiss graduated from Loyola University Chicago Stritch School of Medicine and completed his fellowship at the Washington University School of Medicine. He has been in practice for over 10 years and has a subspeciality in Pulmonary disease and critical care medicine.
Dr. Bemiss will lead this informative session. Their talk will center around the crucial topic of interstitial lung disease (ILD). Attendees can expect to gain invaluable insights into the latest advancements in ILD management, potential treatment options, and the importance of clinical trials in advancing care for scleroderma patients. Following the ILD presentation, we have a panel discussion with Dr. Bemiss, Malek Shawabkeh, and Aaron Gundersheimer to discuss upcoming clinical trials and answer your questions about participation.
Pulmonary Hypertension (PH)
Micheal J. Cuttica, MD
Assistant Professor, Feinberg School of Medicine
Department of Pulmonology and Critical Care Medicine
Ruben Mylvaganam, MD
Assistant Professor, Feinberg School of Medicine
Department of Pulmonology and Critical Care Medicine
Dr. Cuttica has extensive experience in pulmonary vascular conditions, interstitial lung disease, and obstructive lung disease. He is committed to a career in patient-oriented research for pulmonary vascular disease, stemming from his clinical experience developing and building the Northwestern Pulmonary Hypertension Program. He is also interested in exploring the mechanisms of PH in order to identify the disease early and potentially alter PH progression. Dr. Mylvaganam has over seven years of experience with pulmonology and critical care medicine. He graduated from New York University in 2015 and completed his residency at Mount Sinai. He holds a fellowship from the McGaw Medical Center of Northwestern University. His focuses are on chronic thromboembolic pulmonary hypertension, critical care, pulmonary embolism, and pulmonary hypertension.
Dr. Cuttica and Dr. Mylvaganam will co-lead an insightful talk on pulmonary hypertension (PH). Attendees will have the opportunity to learn about pulmonary hypertension, one of the most serious conditions that impact individuals with scleroderma. The talk will give an overview of pulmonary hypertension and potential treatment options.
Managing GI Symptoms in Scleroderma
Dinesh Khanna, MD, MSc
Professor, University of Michigan
Rheumatology and Internal Care Medicine
President, Friends of World Scleroderma Foundation
Dr. Khanna's contributions to the medical field are exceptional, as he leads international efforts to develop guidelines for managing scleroderma and has been instrumental in designing clinical trials for new treatments, resulting in the development of numerous drugs and the publication of over 550 peer-reviewed papers. He is the Director of the University of Michigan’s scleroderma program and in 2011, he received the Doctor of the Year Award from the Scleroderma Foundation.
Dr. Khanna's talk will focus on gastrointestinal issues, which are commonly experienced by those living with scleroderma. This session is set to be an invaluable resource for patients and caregivers, as it will provide crucial insights and approaches to managing GI issues effectively. Dr. Khanna's vast knowledge and experience make this talk a must-attend event for anyone seeking to enhance their understanding and management of GI symptoms in scleroderma.
Workshop: Improving Mental Health with Chronic Illness
Tricia Saviano, MA, ATR, LCPC
Ellie Mental Health Clinic Director
Ellie Mental Health
This interactive workshop will provide practical tools and tips for improving our mental and emotional health. If you’ve experienced feelings of sadness, anxiety, isolation, fear, grief, or depression since receiving your scleroderma diagnosis, you are not alone. We will discuss various mental health challenges that we face with chronic illness, particularly scleroderma. This interactive workshop will be led by the professionals at Ellie Mental Health.
Conference Schedule
8 - 9 am Registration & Breakfast
9:00 - 9:15 Welcome & Opening Remarks
9:15 - 10:15 Dr. Cuttica and Dr. Ruben Mylvaganam, Pulmonary Hypertension
10:15 - 11:15 Dr. Richardson, Hand Involvement - Calcinosis, Dr. Moore, Ultrasound and Scleroderma
11:15 - 11:30 Break
11:30 am -12:30 pm Beth Doerfler, Scleroderma and Nutrition
12:30 - 1:15 Lunch
1:15 - 1:45 Workshop: Mental Health and Chronic Illness Part 1
1:45 - 2:45 Dr. Khanna, Managing GI Symptoms in Scleroderma
2:45 - 3:00 Break
3:00 - 3:30 Workshop: Mental Health and Chronic Illness Part 2
3:30 - 4:30 Dr. Bemiss, Interstitial Lung Disease and Panel Discussion of Clinical Trials
4:30 pm Closing Remarks
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Covid-19 Guidelines
Covid-19 prevention guidelines will continue to be strongly encouraged to protect our scleroderma community. If you are experiencing any symptoms of Covid-19, such as a fever or cough, or have recently been exposed to someone who tested positive for Covid-19 we ask that you stay home. We can provide you with educational materials afterward. Surgical masks will be provided and strongly encouraged, especially in common areas where social distancing is difficult.