
Scleroderma Leadership Summit 2026
for Support Group Leaders and Advocacy Team Members
April 24 | 2:00 - 4:00 p.m. CT | Hyatt Lodge - Oakbrook, IL
This event is held in conjunction with our Scleroderma Patient Education Conference. Get more info and register for the conference here.
Program Overview
-
Connect with your fellow leaders
-
Share practical tools and resources
-
Grow your leadership skills
-
Get support and guidance
-
Fun giveaways
-
Free to register

What to expect
A focused leadership training and collaborative idea-sharing experience where you’ll connect with fellow leaders and help shape the future of support and advocacy within our community.
Together, we’ll explore:
-
Sustaining and growing support groups
-
Increasing awareness, engagement, and storytelling
-
Advocacy and finding your public voice
-
Leadership development, mentorship, and long-term sustainability.

Get Ready for an Inspiring Weekend!
Immediately following the summit, you are invited to join us for the conference welcome reception and patient panel from 4:30 - 6:30 PM: Finding Strength & Resilience in the Face of Adversity.
Return on Saturday for a full day of programming featuring educational sessions led by leading scleroderma experts. Registration is free, and meals are provided. There is a room block at the Hyatt Lodge with a limited number of rooms at a special rate of $179, available for Friday, April 24 only. Hyatt Lodge room reservations must be made by March 26.














