top of page

Support Groups

We have a strong community of people who are here to welcome you. Support groups provide a forum to share experiences and ask questions among people who truly understand what you're going through. Discover practical tips to improve everyday life and learn about resources available to you. The camaraderie you'll find within the group fosters an atmosphere of hope and encouragement amongst peers. 

 

Whether you have lived with scleroderma for many years or are recently diagnosed, you can create important connections with others who have a shared experience and get the support you need.

A Supportive Hug

Topic-Based Groups

Some of our support groups focus on a specific topic of interest or are built for a specific group of people. These groups meet online and are open to anyone, regardless of where you live.

Parents of Kids and Teens with Scleroderma

Meets on the 1st Thursday and 2nd Saturday of each month.

Thursday Meetings                   Saturday Meetings

8 PM ET                                12 PM ET

7 PM CT                                11 AM CT

6 PM MT                               10 AM MT

5 PM PT                                 9 AM PT

Spanish-Speaking (Apoyo en Español)

Meets the 2nd Thursday of every month.

8 PM ET

7 PM CT

6 PM MT

5 PM PT

Scleroderma & the Lungs

For those seeking insight and support for issues related to lung health, such as interstitial lung disease (ILD) or pulmonary hypertension. Meets on the 2nd Tuesday of every month.

8 PM ET

7 PM CT

6 PM MT

5 PM PT

Get Moving with Scleroderma

Discuss ways to improve your overall health and improve scleroderma-related symptoms through movement and exercise. Meets on the 3rd Tuesday of every month.

6 PM ET

5 PM CT

4 PM MT

3 PM PT

Young Adults (<30)

Alternates monthly between in-person and Virtual meeting dates. In person meeting dates are held on the 2nd Saturday of the month and Virtual meetings are held on 2nd Monday of the month.

In-person Meetings                                          Virtual Meetings

2 PM ET                                                       10 PM ET

1 PM CT                                                       9 PM CT

12 PM MT                                                    8 PM MT

11 AM PT                                                     7 PM PT

Come One, Come All

Open forum of discussion for everyone! Connect with others around the country. Meetings held online. Meets on the 4th Saturday of every other month.

1:00 PM ET

12:00 PM CT

11:00 AM MT

10:00 AM PT

Geographic Support Groups

Our local support groups are intended to connect you with others who may live near you, however we welcome all participants regardless of where you live. A majority of meetings are held online over Zoom, allowing participants from anywhere to join from the comfort of home. If you do not see a support group near you, we suggest connecting with the support group closest to you or simply find a meeting time that works for your schedule. Check the calendar and support group leader updates to know if there will be an in-person meeting.

2.png
Arizona
Northern Arizona

Meets on Saturdays in-person. Check the calendar for updates.

11:30 AM PT

California
Antelope Valley
Bakersfield

Meets on the 4th Saturday of every month.

Schedule varies. Check the calendar for specific dates and times. Usually meets in-person. 

1 PM ET

12 PM CT

11 AM MT

10 AM PT

1 PM ET

12 PM CT

11 AM MT

10 AM PT

Bay Area
Camarillo/ Ventura County

Meets on the 3rd Saturday of every month.

Meets on Saturdays in-person. Check the calendar for updates.

4 PM ET

2 PM CT

1 PM MT

12 PM PT

1:30 PM ET

12:30 PM CT

11:30 PM MT

10:30 AM PT

Central Coast
Fresno

Meets on Saturdays. Check the calendar for updates.

Meets on the 4th Saturday of every month.

2 PM ET

1 PM CT

12 PM MT

11 AM PT

1 PM ET

12 PM CT

11 AM MT

10 AM PT

Imperial County/El Centro
Inland Empire/ San Bernardino

Meets on the 4th Saturday of every other month.

Meets on the 1st Saturday of every other month.

1 PM ET

12 PM CT

11 AM MT

10 AM PT

1 PM ET

12 PM CT

11 AM MT

10 AM PT

Los Angeles – In person
Los Angeles County

Meets on the 2nd Saturday of every other month.

Meets on the 3rd Saturday of the month in person. Check the calendar for updates. 

1 PM ET

12 PM CT

11 AM MT

10 AM PT

2 PM ET

1 PM CT

12 PM MT

11 AM PT

Monterey Bay
Orange County

Meets on the 4th Saturday of every month.

Meets on the 1st Saturday of every third month.

1 PM ET

12 PM CT

11 AM MT

10 AM PT

2:30 PM ET

1:30 PM CT

12:30 PM MT

11:30 AM PT

Palm Springs
Palo Alto - Hybrid

Meets on the 1st Saturday of every other month.

Meets on Saturdays in-person, meetings held on Sundays are virtual meetings. Check the calendar for the schedule and updates.

1 PM ET

12 PM CT

11 AM MT

10 AM PT

Saturday Meetings                    Sunday Meetings

2 PM ET                                 1:30 PM ET

1 PM CT                                12:30 PM CT

12 PM MT                             11:30 AM MT

11 AM PT                              10:30 AM PT

San Diego/ Mission Valley
San Fernando Valley

Meets on the 1st Saturday of every other month.

Meets on the 2nd Sunday of every other month.

1 PM ET

12 PM CT

11 PM MT

10 AM PT

2 PM ET

1 PM CT

12 PM MT

11 AM PT

Santa Barbara
Santa Rosa

Schedule varies. Check the calendar for specific dates and times.

Meets on the 4th Saturday of every other month

1 PM ET

12 PM CT

11 AM MT

10 AM PT

10 PM ET

9 PM CT

8 PM MT

7 PM PT

Washington D.C./Maryland
D.C. Metro area

Meets on the 4th Wednesday of every month.

7 PM ET

6 PM CT

5 PM MT

4 PM PT

Hawaii
Honolulu and Maui

Schedule varies. Check the calendar for specific dates and times.

Illinois
Chicago – Downtown
Chicago – North Shore

Meets on the 1st Wednesday of every month.

Meets on the 3rd Saturday of every other month.

7 PM ET

6 PM CT

5 PM MT

4 PM PT

12 PM ET

11 AM CT

10 AM MT

9 AM PT

Chicago – Western Suburbs 
Central Illinois (Decatur/Springfield)

Meets monthly on the 4th Saturday

Schedule varies. Check the calendar for specific dates and times.

7 PM ET

6 PM CT

5 PM MT

4 PM PT

10 PM ET

9 PM CT

8 PM MT

7 PM PT

Indiana
Nevada
Statewide
Statewide

Meets on the  4th Saturday of every month.

Meets on the 3rd Saturday of every month.

11 AM ET

10 AM CT

9 AM MT

8 AM PT

4 PM ET

3 PM CT

2 PM MT

1 PM PT

Ohio
Texas
Statewide

Meets on the 4th Monday of every other month. Check the calendar for specific dates and times.

Statewide

Meets on the 4th Wednesday of every month.

1 PM ET

12 PM CT

11 AM MT

10 AM PT

7 PM ET

6 PM CT

5 PM MT

4 PM PT

Wisconsin
Milwaukee
Madison

Meets on the 3rd Monday of every month.

Meets on the 3rd Monday of every month online. Occasionally meets in person. Check the calendar or with your support group leader for specific dates and times.

6 PM ET

5 PM CT

4 PM MT

3 PM PT

6 PM ET

5 PM CT

4 PM MT

3 PM PT

Become a Support Group Leader

Are you looking for a support group in your area to connect with others who understand your experiences with scleroderma?

 

Then join us in becoming a support group leader! Anyone can join and gain the necessary skills to provide invaluable help to others facing similar challenges. Don't hesitate to reach out to us below and get started on this rewarding journey of support and empowerment.

bottom of page