We have a strong community of people who are here for you. Support groups provide a forum to share experiences and ask questions among a group of people who understand what you're going through. Although support groups are labeled by geographic region, they currently meet online and anyone is welcome to attend.
Chicago - North Shore
Leader: Franny Kaplan
Meetings: 2nd Saturday every other month from 10am-12pm
Chicago - Western Suburbs
Leader: Emily F.
Meetings: 3rd Saturday of every month
Chicago - Downtown
Leader: Mary Piper-Stanwyck
Phone: (708) 682-4193
Meetings: 1st Wednesday of the month from 6-8pm
Central Illinois (Decatur/Springfield)
Leader: Aissa Norris
Phone: (217) 853-6058
Meetings: Schedule varies. Please contact support group leader.
Wisconsin - Madison
Leader: Jennifer Meier
Meetings: Meets monthly, Thursdays and Saturdays. Contact support group leader for schedule.
Leader: Rosalind Parker
Meetings: 4th Saturday of every month
We connect you with experts in the field to help you understand scleroderma and how to live better. Sessions cover a range of topics from nutrition to lung involvement to GI issues. We continue to add new programs throughout the year. Check back for updates or sign up for email alerts.
Online via Zoom
If you've recently received a scleroderma diagnosis you may have a lot of questions about what to expect and what your options are. Join us for Scleroderma 101, a free virtual meeting led by the experts at the Northwestern Scleroderma Program. Meeting is held via Zoom.
Anyone is welcome to attend. This is your chance to learn about scleroderma, get your questions answered, connect with others and learn how to stay mentally and physically well.
Wednesday, November 9
New Drug Approvals for Scleroderma Interstitial Lung Disease
Yoga for Scleroderma Routine
Cooking Nutritious Meals at Home: Advice from a Chef
Raynaud Phenomenon and Digital Ulcers in Scleroderma
More videos on our YouTube channel
Yoga for Scleroderma
Empower yourself to relieve symptoms and reduce stress! Yoga for Scleroderma was founded by Kathy Randolph to offer relief to scleroderma patients through yoga postures, breathing techniques and guided meditation. Their goal is to make yoga accessible for everyone so you can keep moving. Visit yogaforscleroderma.com to learn more.
We are here to help. Contact us with any questions you may have.