Patient Resources
Support Groups

We have a strong community of people who are here for you. Support groups provide a forum to share experiences and ask questions among a group of people who understand what you're going through. Although support groups are labeled by geographic region, they currently meet online and anyone is welcome to attend.

Chicago - North Shore

Leader: Franny Kaplan

Phone: 847-533-5075

Email: nsscleroderma@gmail.com

Meetings: 2nd Saturday every other month from 10am-12pm

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Chicago - Western Suburbs

Leader: Emily F.

Email: westburbsscleroderma@gmail.com

Meetings: 3rd Saturday of every month

Chicago - Downtown

Leader: Mary Piper-Stanwyck

Phone: (708) 682-4193

Email: piperstanwyck@gmail.com

Meetings: 1st Wednesday of the month from 6-8pm

Central Illinois (Decatur/Springfield)

Leader: Aissa Norris

Phone: (217) 853-6058

Email: 1912barn@gmail.com

Meetings: Schedule varies. Please contact support group leader.

Wisconsin - Madison

Leader: Jennifer Meier

Email: sclerodermagroupmsn@gmail.com

Meetings: Meets monthly, Thursdays and Saturdays. Contact support group leader for schedule.

NW Indiana

Leader: Rosalind Parker

Email: nwindianassg.rparker@gmail.com

Meetings: 4th Saturday of every month

Education Programs

We connect you with experts in the field to help you understand scleroderma and how to live better. Sessions cover a range of topics from nutrition to lung involvement to GI issues. We continue to add new programs throughout the year. Check back for updates or sign up for email alerts.

Scleroderma 101

Online via Zoom

 

If you've recently received a scleroderma diagnosis you may have a lot of questions about what to expect and what your options are. Join us for Scleroderma 101, a free virtual meeting led by the experts at the Northwestern Scleroderma Program. Meeting is held via Zoom.

 

Anyone is welcome to attend. This is your chance to learn about scleroderma, get your questions answered, connect with others and learn how to stay mentally and physically well.

 

NEXT SESSION:

Wednesday, November 9

4-5pm CST

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Program sponsor:
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Healthy Strategies for Coping with Scleroderma

Online Meeting via Zoom

 

This is a workshop for newly diagnosed patients and their caregivers. The format will include both a presentation on coping as well as a group discussion in which participants can ask questions and share perspectives about coping with scleroderma, coming out of the pandemic, and anything else as it arises. This workshop is led by Dr. Judy Wilen from Northwestern Medicine.   

 

NEXT SESSION:

Saturday, December 3, 2022

10:30-11:30am CST

Educational Videos

New Drug Approvals for Scleroderma Interstitial Lung Disease

Yoga for Scleroderma Routine

Cooking Nutritious Meals at Home: Advice from a Chef

Raynaud Phenomenon and Digital Ulcers in Scleroderma

  • YouTube
More videos on our YouTube channel
youtube.com/gcscleroderma
Active Senior Couple

Yoga for Scleroderma

Empower yourself to relieve symptoms and reduce stress! Yoga for Scleroderma was founded by Kathy Randolph to offer relief to scleroderma patients through yoga postures, breathing techniques and guided meditation. Their goal is to make yoga accessible for everyone so you can keep moving. Visit yogaforscleroderma.com to learn more. 

Questions?

We are here to help. Contact us with any questions you may have. 

(312)660-1131    info@stopscleroderma.org