The Freezer Aisle is Not My Friend: My Life with Raynaud’s
By: Esthela Nunez Franco
Raynaud’s: My Early Clue
I think most people with scleroderma know about Raynaud’s. The tiny blood vessels in your fingers and toes tighten too much in response to cold or stress. For me, cold is definitely the bigger culprit. I tend to lean toward blaming the weather more than stress, otherwise, I would have had Raynaud’s since I started paying a mortgage!
With Raynaud’s, blood vessels act like overenthusiastic security guards: “Cold air? Everybody out!” Leaving fingers cold, numb, tingly, and often painful. Not to mention the painful sores that can develop, but beyond the humor and pulling out grandpa’s itchy wool sweater when temps hit 70 or below, Raynaud’s can be serious and require careful monitoring. Raynaud’s can also be an early clue; for me, it was.
As seasons change and winter season is approaching, I find myself looking for the perfect mittens, heated gloves, the latest warmth technology- you name it. Keeping my hands warm is a full-time job. Twenty years ago, I didn’t think much of my hands until it became a bigger issue. I could handle cold fingers without a big deal- but when accompanied by an inability to swallow, massive heartburn, and GI issues, it was time for me to see a doctor. And there it was: scleroderma.
My fingers were my early-warning lights. But it took a formal diagnosis for me to start taking care of my hands. Over the years, I’ve learned helpful everyday steps:
I’ve learned that keeping my whole body warm makes a difference for me. I layer up, wear mittens and warm socks, and keep hand warmers nearby. You won’t catch me without sleeves.
I try to avoid sudden temperature changes when I can. The freezer aisle may look innocent, but Raynaud’s keeps receipts. Even holding a cold beverage can be challenging for me. When possible, I’ll ask friends or family to handle the really cold parts of grocery shopping.
Quitting smoking and nicotine has been important for me. I know, I know, but I’ve noticed that avoiding nicotine can make a difference.
I’ve also learned to pay attention to medications and stimulants. If I notice my symptoms changing, I bring it up with my doctor and ask whether anything I’m taking could be contributing.
When I’m having an attack, I try to warm my hands gently. I avoid putting numb hands under very hot water or directly against a high heat source. I also try to keep my hands moisturized as much as possible. My keyboard is all greasy, but who cares?
When my attacks are frequent or severe, I talk with my healthcare team about them. I’ve learned that there are treatment options to discuss, and what makes sense can be different from person to person.
Yes, go out and buy that itchy wool sweater, the ugliest one. You will learn to love it. I opt for warm fabrics such as fleece, wool, down, or synthetic insulation coats, plus windproof, water-resistant outer fabrics.
Most of all, I’ve learned to pay attention to my own warning lights and to talk with my healthcare professional when something doesn’t feel right.
As the colder weather arrives, I’m trying to focus not only on what I need to avoid, but on the warmth and comfort I can still enjoy. For me, that might mean a simple cup of cocoa, an old (and incredibly warm) wool sweater, and settling into my favorite bookstore, or the comfort of my own home.
I hope you find your own ways to stay warm, comfortable, and connected this winter, and that you’re able to enjoy the season as much as I do.
Everyone’s experience with Raynaud’s can be a little different. If you’d like to learn more, here are a few resources that I’ve found helpful and that may give you some additional information to explore with your healthcare team.
Related Videos
Esthela Nunez Slee
Esthela is the author of several children’s books and adult nonfiction. A lifelong horse lover, she brings curiosity, humor, and plenty of personality to both her writing and her life. Esthela is passionate about learning, raising awareness, and connecting with others living with scleroderma.
Patient Voices Disclaimer: The views and experiences shared in this blog reflect the personal perspectives of patients and are not medical advice. Before pursuing any treatment, therapy, medication, or other idea discussed here, please talk with your physician or healthcare provider to determine what’s right for you.
Comments